2021 Georgia Bio Patient Advocacy Summit

Sep 21, 2021 11:00AM—1:00PM

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Join us for Georgia Bio’s 2nd Annual Patient Advocacy Summit! The COVID-19 pandemic has amplified the need to explore ways in which biopharmas, patient advocacy organizations, and legislators can better partner to advance new treatments and cures. The event will bring together the patient advocacy community, industry, and legislators to showcase best practices and cutting-edge examples of how life sciences companies can more fully incorporate the patient voice into the work they do and to help identify policy issues for the 2022 Legislative Session.

Objectives

This program seeks to…

  • Showcase best practices and cutting-edge examples of how life sciences companies can more fully incorporate the patient voice into the work they do. 
  • Identify patient priorities and gain an understanding of what Georgia Bio should take into account when developing its 2022 legislative priorities.  
  • Showcase Georgia Bio and its members as an ally for patient groups. 
  • Identify how industry and be a platform for advancing patient priorities such as access 
  • Connect patients and industry 
  • Amplify the patient voice and encourage greater patient involvement at every stage of the continuum 
  • Share what challenges the advocacy community is experiencing during COVID. ie funding. 

Sponsorship opportunities are available. Click HERE to learn more.

Registration Rates:

  • Georgia Bio Members: $30
  • Non-Members: $60
  • Patient Advocacy Groups: Complimentary
    • Please note: This rate is only available to those directly affiliated with grassroots patient advocacy groups.

Agenda:

Keynote: Precision Medicine and the Revolution in Patient Care

Dr. Suresh Ramalingam, Executive Director of the Emory Winship Cancer Institute, will discuss how precision medicine promises to revolutionize the cost and delivery of patient care. Based on an individual’s genomic profile, medical interventions can now be tailor-made to maximize benefit and minimize unforeseen complications. While precision medicine as a whole can potentially reduce healthcare costs and increase patient satisfaction, R&D and health care organizations’ fiduciary responsibility to patient privacy must also be addressed in the overarching theme.

Speakers: Dr. Suresh Ramalingam, Executive Director, Emory Winship Cancer Institute 
Keynote: Medicare Multi-Cancer Early Detection Screening Coverage Act of 2021

Multi-cancer early detection screening tests are an effective way to detect specific cancers early, even when there have been no symptoms or signs of the disease. Detecting a condition early means getting the right treatment at the right time. Bills like H.R.1946 seek to offer treatment at the right price too. H.R.1946, the Medicare Multi-Cancer Early Detection Screening Coverage Act of 2021, provides Medicare coverage and payment for multi-cancer early detection screening tests that are approved by the FDA and that are used to screen for cancer across many cancer types. Watch U.S. Congressman Drew Ferguson and Georgia CORE’s Lynn Durham discuss the positive impact this legislation could have on patients nationwide.

Speakers: Congressman Drew Ferguson, U.S. Representatives, GA-03; Moderated by: Lynn Durham, President & CEO, Georgia Center for Oncology Research and Education 
Panel: COVID Outlook and Vaccine Update

As we continue to navigate the COVID-19 pandemic, information and outlook is changing on a daily, and sometimes hourly, basis. Join BIO VP of Infectious Diseases, Phyllis Arthur, as she provides the most current overview of this ever-changing health climate, developments within the vaccine space, and the steps needed to guide us to a healthier future.

Speakers: Phyllis Arthur, VP of Infectious Diseases and Emerging Health Policy, BIO; Moderated by: Melissa Bishop Murphy, Pfizer 
Panel: Impact of COVID on Patient Advocacy Groups

Join us for a discussion about the impact that the pandemic has had on patient advocacy groups and ways to stay afloat during an ongoing public health crisis. Patient advocacy and support organizations play an important role in improving outcomes for individuals with acute and chronic illnesses. The COVID-19 pandemic has had a profound effect on the solvency of regional and national patient advocate and support groups. Many such organizations, particularly those that specialize in the support of persons with cancer or rare diseases, are in urgent need of financial support to continue to meet the needs of a increasing number of individuals.

Speakers: Mapillar Dahn, Founder & CEO, MTS Sickle Cell Foundation; Cory Lewis, Founder & Patient, RedMoon Project, Inc.; Tiah Tomlin, Founder & Executive Director, My Style Matters; White Paper Report: Dr. Eric Bethea, Advocates for Responsible Care; Moderated by: Haley Stolp, Advocates for Responsible Care 
Panel: Legislative Advocacy & Updates for the Patient Community

The battle to address the global SARS-CoV-2 pandemic catapulted many issues to the forefront of the healthcare industry, but how to do we address some of the legal, regulatory and social hurdles associated with them? Join us for a legislative panel featuring State Representative Sharon Cooper, State Senator Steve Gooch, and State Representative Kim Schofield to discuss: – legislative action to address the need to need for telehealth services during a public health state of emergency – increased clinical trials and availability of options for patients in our state – an update on rural broadband to provide much-needed care and access to the almost 2 million Georgians living in rural areas.

Speakers: State Representative Sharon Cooper (R-Marietta); State Senator Steve Gooch (R-Dahlonega); State Representative Kim Schofield (D-Atlanta); Moderated by: Marcus Downs, Director of State Government Relations,
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